Brandon Bull aged 10 from Hereford, faces many health and mobility challenges every day due to having the extremely rare combination of both Ataxia and ARSACS.
Brandon’s condition will deteriorate and the family have noticed a dramatic change in his ability since the beginning of 2020.
He isn’t as mobile, he’s started to slur and most scarily he can choke not only on food etc but his own saliva, (all parts of the condition), this is where fundraising comes in to be able to live the life that he enjoys, to be as independent as possible.
On the 10th and 11th October. Three Herefordshire men who work at Kingspan have decided to raise £2,000 to help Brandon. Mark Radon, Doug Glasgow, and Mark Lewis are in training ahead of a 52 mile march across the Brecon Beacons.
They will be hiking over the Brecon Beacons, each carrying 25kg loads in just 24 hours.
You can donate here https://www.justgiving.com/crowdfunding/mark-lewis-657?fbclid=IwAR1Da5DZa9-15yaVPqi7xHRJzsA6_-3qKDW6NuGez8CcmS9CrgZ5ISfW5tQ
