There is nothing more devastating than finding out that your child has cancer, it’s made even worse when you hear the news that it’s terminal.

This evening, we share a heartbreaking update from Frank’s mum:

“It is with an incredibly heavy heart that I share this update from Emma.

We learned last week Frank’s cancer has returned in his lungs. The tumours are multiple, complicated and inoperable. Therefore the sickening conversation we’ve always dreaded has (repeatedly) been had: his condition is terminal.

It’s difficult to grasp as he is well and experiencing no symptoms. In fact he’s 100% but of course this will change.

As a family having considered all palliative options he’s opted for the least invasive chemotherapy from here: oral & taken at home which means no hospital time, no surgeries and minimal/no side effects. He’s taken ownership and values quality over quantity with his remaining time. This is a decision which Stan, Ed & I wholeheartedly understand, respect and support. We are very proud of him.

It goes without saying we have inadequate vocabulary to articulate the helpless devastation & terror we feel but we appreciate how lucky we are to have this period with him being so well and intend to make full use of it.

We’re compiling a bucket list including hot tubs, chocolate fountains, quad bike riding, whale watching, and firing a gun (?!) so watch this space and we’ll shout if we need any help.

We appreciate your support and ongoing love and kindness. Hold us up.”

You can donate by visiting – https://www.justgiving.com/crowdfunding/joanne-smith-659?utm_term=pxAxKdqeP